Category: Speakers

Revee Agyepong

Revee Agyepong, Age 26 Registered Nurse at the Stollery Children’s Neonatal Hospital Intensive Care Unit I am just under one-year post stem cell transplant !!! Current medications – Sirolimus (antirejection), Valacyclovir (antiviral), Atovaquone (Pneumocystis pneumonia prophylaxis), pantoprazole (for stomach pain), Keflex (antibiotic), Vitamin D A scripture that keeps me going through the tough times is’ …

Maya Daniel

Maya Daniel, I am a Business Instructor (I would rather not disclose my age). Not on any medication, I maintain myself via rest, balanced diet, fluids, faith in God. I have been on this regime my entire life. A scripture that keeps me going is Psalm 46:10- Be still and know that I am God. …

Valissa Providence

Valissa Providence, 28 years old, medical office assistant In school for a medical laboratory assistant. I have been on the red cell blood exchange program for at least 7-8 years now and just recently started taking hydroxyurea again for 2 months now to help. Mainly because the red cell exchange alone is now not working …

Ufuoma Muwhen

Ufuoma Muwhen, Age: 20yrs old I’m currently studying biological sciences at the University of Alberta. Currently, I am just over two years post-transplant and doing WELL, and am just taking penicillin and vitamin D for prophylaxis. In January 2018, I was taken off all my transplant medication – and was just told to continue penicillin …

Dr. Jean Walrond

Dr. Jean Walrond, Ph.D. Sessional Instructor, Department of Social Sciences University Concordia University Sickle Cell Foundation of Alberta Vice President Dr. Walrond is a founding member of the Sickle Cell Foundation of Alberta and a driving member of the (Re) Imagining Health conference committee. Sickle Cell Disease and Thalassaemia, Sickle Cell Disease. She loves to …

Carrie Starnes

Carrie Starnes, CCLS, LRT / CTRS PrAssistant Professor of Medicine Section of Hematology / Oncology University of Illinois Hospital & Health Sciences System Carrie Starnes is the child life specialist at the Indiana Hemophilia and Thrombosis Center, an outpatient clinic that provides services for blood-related disorders. Previously, Carrie worked as a Recreational Therapist/Child Life Specialist …

Dr. Santosh L. Saraf

Dr. Isaac Odame, MD PrAssistant Professor of Medicine Section of Hematology / Oncology University of Illinois Hospital & Health Sciences System Dr. Saraf received his medical degree from the Temple University School of Medicine and completed an internal medicine residency and hematology & oncology fellowship at the University of Illinois at Chicago. Dr. Saraf joined …

Dr. Isaac Odame

Dr. Isaac Odame, MB ChB, MRCP (UK), FRCPath, FRCPC Professor and Alexandra Yeo Chair in Haematology Director, Division of Haematology, Department of Medicine and Paediatrics, University of TorontoHaematology Section Head, Division of Haematology / Oncology and Center for Global Child Health, Medical Director, Global Sickle Cell Disease Network Dr. Odame is a Staff Physician in …

Dr. Emily Riehm Meier

Emily Riehm Meier, MD, MSHS Pediatric Hematologist and Director, Sickle Cell Research – Indiana Hemophilia & Thrombosis Center, Indianapolis, IN Adjunct Assistant Professor of Pediatrics – Michigan State University College of Human Medicine, East Lansing, MI Dr. Meier is a board certified pediatric hematologist/oncologist who has devoted his career to caring for patients with sickle …