Resources

Resources


Feature

Emergency Medicine Cases

Episode 68 Emergency Management of Sickle Cell Disease Podcast

 

Latest YouTube Resources

 

 

School Resources

Guide to School Policy on Sickle Cell, based on research conducted here in the UK. The guide is an open education document (CC-BY-SA, some rights reserved) which means that it can be printed and distributed freely and placed on a  web-site without charge. It can also be used and adapted, for example to the context of your city. – Simon Dyson   Professor of Applied Sociology De Montfort University
Leicester UK

Sickle Cell Video

Educational video for parents, patients, schoolteachers and school nurses 

The Family Legacy

The Family Legacy part 2


Parent’s guide to managing sickle cell disease

If you are told your child has sickle cell disease you will probably have lots of questions. In this book we will describe what sickle cell disease is, the different types, treatments available and offer practical advice on living with and supporting a child
with sickle cell disease.

Here is the Parents Guide


Sickle Cell Disease Information Links

Alberta Health Services

A Century of Progress: Milestones in Sickle Cell Disease Research and Care

Evidence-Based Management of Sickle Cell Disease: Expert Panel Report

Hydroxyurea for the Treatment of Sickle Cell Disease (Agency for Healthcare Research and Quality)

Sickle Cell Anemia (MedlinePlus)

Sickle Cell Information Center  Grady Memorial Hospital Atlanta

Sickle Cell Email List Service

Sickle Cell MD

Sickle Cell Disease: Pain Management – Alberta

The Sickle Cell Foundation of Tennessee is a non-profit organization that operates for the benefit of individuals living with Sickle Cell Disease.

Sickle Cell Partners of the Carolinas: Provides a network of support for patients and families affected by Sickle Cell Anemia; to raise awareness and educate the community; and to advocate for a cure. 

Sickle Cell Disease Researchers Identify a Children’s Stroke Prediction Tool

 

Did you know?

Extremely cold weather can trigger a pain crisis in a child. Even when bundled up in a snowsuit, the shift in temperature may be enough to cause red blood cells to begin sickling in just a few minutes of outdoor play.