Guide to School Policy on Sickle Cell, based on research conducted here in the UK. The guide is an open education document (CC-BY-SA, some rights reserved) which means that it can be printed and distributed freely and placed on a web-site without charge. It can also be used and adapted, for example to the context of your city. – Simon Dyson Professor of Applied Sociology De Montfort University
If you are told your child has sickle cell disease you will probably have lots of questions. In this book we will describe what sickle cell disease is, the different types, treatments available and offer practical advice on living with and supporting a child
with sickle cell disease.
Sickle Cell Partners of the Carolinas: Provides a network of support for patients and families affected by Sickle Cell Anemia; to raise awareness and educate the community; and to advocate for a cure.
The only known cure for Sickle Cell Disease is a stem cell transplant (or bone marrow transplant). Due to the significant risks involved in this procedure, including life-threatening complications, it is rarely an option for sickle cell patients.